Professor JT Hughes1, Professor Odette Pearson2, Ms Sian Graham1
1Flinders University, Darwin, Australia, 2South Australian Health and Medical Institute, Adelaide, Australia
Biography:
Bio to come
Background:
The survival of Aboriginal and Torres Strait Islander peoples requires kidney health. The eGFR3 Study will describe long term kidney function outcomes of Aboriginal and Torres Strait Islander adults who participated in the eGFR1 and eGFR2 clinical-research assessments during (2007-2014).
Aim:
To describe key leadership decisions that support a culturally safe re-engagement for a research project to build new knowledge from previously contributed eGFR Study kidney health clinical assessments.
Method:
The eGFR3 Study leaders championed regional leadership of Aboriginal and Torres Strait Islander peoples, to establish an inaugural Community Governance Group (ATSICGG), which had an aim, budget and technical support from Indigenous Chief Investigators. ATSICGG annual workshops fostered in-depth knowledge exchange and promoted Indigenous decision making on study conduct.
Results:
eGFR3 Study implemented “trigovernance” in 2021, comprising study leaders that represented community, clinician and research -relevant needs. Indigenous people’s collective benefit and individual experience informed study conduct, attending to requirements of Indigenous Sovereignty, Data Governance, Communication, Recruitment, Impact and Harm-avoidance. At the conclusion of the 4th annual eGFR3 Study trigovernance workshop, in 2024, the ATSICGG self-advocated as leaders of research governance consolidating the Community-level re-engagement across Qld, NT and WA which endorsed eGFR3 Study re-contacting and inviting study participation during June 2024-end 2025.
Conclusion:
This abstract contextualises the study leadership environment and partnerships in health and research. Trigovernance has been crucial to gaining agreements to partner and offer the third cohort assessment. By extension, those partnership agreements support development of long-term kidney health knowledge, led by Aboriginal and Torres Strait islander people, who remain data owners, and research beneficiary.
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