Miss Jackie Lee Hazelhurst1, Curtis Walker2, John Kearns3, Merryn Jones3, James Hedley4, Rachel Cutting4, Nicholas B. Cross5,6, Lutz Beckert1,5, Suetonia C. Green1,5, Angela Webster4
1Department of Medicine, University of Otago, Christchurch, , , 2Te Whatu Ora Te Pae Hauora o Ruahine or Tararua, , , 3Kidney Health New Zealand, , , 4Sydney School of Public Health, University of Sydney, , , 5Te Whatu Ora Waitaha, , , 6New Zealand Clinical Research, ,
Biography:
Bio to come
Abstract:
Objective:
High quality ethnicity reporting is a fundamental component of monitoring inequities in health outcomes for Indigenous Peoples and minority groups. The Australia and New Zealand Dialysis and Transplantation registry (ANZDATA) is the national clinical quality registry for patients treated with kidney replacement therapy. We evaluated the accuracy of ethnicity recording in ANZDATA for Māori and Pacific Peoples.
Design, setting, participants: Population-based analysis of ethnicity recording in people with incident kidney failure in Aotearoa New Zealand. Registry data (ANZDATA) were compared with hospitalisation data (National Minimum Dataset) as the reference standard using deterministic data linkage.
Main outcome measures: Concordance metrics between datasets (sensitivity, specificity, positive and negative predictive values) overall and by demographic and clinical characteristics; trends in sensitivity over time.
Results:
Between 2006-2019, 2431 of 7648 patients (31.8%) were identified as Māori by hospitalisation data, of which the registry recorded 2229 (94.6%). Overall sensitivity was 94.6% (95%CI 63.3–70.5%), with high specificity (98.5%, 95%CI 98.1–98.8%). 1718 (22.4%) people were identified as Pacific Peoples by hospitalisation data, with 1552 (90.4%) recorded in the registry. Overall sensitivity was 94.6% (95%CI 63.3–70.5%), with high specificity (98.5%, 95%CI 98.1–98.8%). For Māori and Pacific Peoples, Cohen’s kappa exceeded 0.81 overall and in subgroup analyses, suggesting high agreement. There was no important variation in accuracy of reporting over time.
Conclusion:
Although ethnicity data collection in ANZDATA is currently not standardised, there was consistently high concordance between registry and hospitalisation data over the study period.