DISSEMINATING RESEARCH IN CHRONIC KIDNEY DISEASE TO PATIENTS AND CAREGIVERS: A WORKSHOP REPORT
Ms Anastasia Hughes1,2, On behalf of BEAT-CKD Investigators
1The University Of Sydney, Australia, 2The Centre for Kidney Research, Westmead, Australia
Aim: To identify strategies to improve the dissemination of research in chronic kidney disease (CKD) to patients and caregivers.
Background: Research is rarely disseminated in appropriate forms to patients and caregivers, however strategies are needed and can improve the access, uptake and impact of research by patients and caregivers.
Methods: We convened. National workshop with patients with CKD and caregivers (n=33) and health professionals (n=66) from Australia. Across 10 facilitated break out groups, participants discussed strategies to increase the involvement of patients and caregivers in the dissemination of research. Transcripts were analysed thematically.
Results: Three themes with subthemes were identified. Eliminating barriers to access (Ensuring free access to journal articles; Translating into different languages; Providing plain language information; Flexible engagement; Maximising exposure) was considered essential to provide support engagement with research. Piquing interest (Emphasizing the benefits and impacts; Using engaging modes of delivery; Increasing visibility in clinical settings; Harnessing popular culture) was seen to be crucial to ensure broad and targeted dissemination of research to all population groups. Demonstrating trustworthiness and repute (Filtering for high quality information; Propagating through networks and community-based channels) was considered to pivotal to build relationships and rapport helping to facilitate knowledge exchange.
Conclusion: Eliminating barriers, piquing interest and demonstrating trustworthiness and repute, can improve the way research is disseminated to patients and caregivers. Strategies to improve dissemination may facilitate improved access, interest and trust in research.
Biography:
I have an interest in public health and health promotion, with the aim of improving health literacy and health outcomes by promoting initiatives to all demographics. Achieving this through addressing and reducing health inequalities and inequities. I have a particular interest in chronic kidney disease, patient-reported outcomes, core outcomes, AOD particularly e-cigarettes and alcohol, rural and remote health, Aboriginal and Torres Strait Islander health, and chronic diseases.